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NMDP

Be The Match
  • About Us
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  • Transplant Indications and Outcomes
    • HLA Today
      • HLA Today
    • Disease-Specific Indications and Outcomes
      • AML - Adult
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      • MDS
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      • Hodgkin Lymphoma
      • Multiple Myeloma
      • Severe Aplastic Anemia & Marrow Failure
      • Sickle Cell Disease
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      • Inherited Metabolic Disorders
      • Thalassemia
      • Other Diseases
      • Multiple Sclerosis
      • Systemic Sclerosis
    • Additional Outcomes
      • Unrelated vs. Sibling Donor Outcomes
      • Older Patient Outcomes
      • Timing Impact on Outcomes
    • Eligibility
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  • Transplant Therapy and Donor Matching
    • Cell Sources
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      • Likelihood of Finding a Match
      • Preliminary Search Request
    • Jason Carter Clinical Trials Program
  • Post-Transplant Care
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      • Pediatric Considerations
    • Chronic GVHD
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    • Post-Transplant Guidelines
  • Medical Education & Research
    • Browse News
    • Browse Research
      • Mismatched donor sources may fill an unmet need for patients without fully matched family or unrelated donors
      • Hematopoietic cell donor type may not impact quality of life post-transplant
      • Novel three-drug combination improves GVHD-free and relapse-free survival and relapse after allogeneic transplant
      • Long-term risks of hematological malignancy, autoimmune or thrombotic events do not differ in bone marrow and filgrastim-mobilized PBSC donors
      • Socioeconomic status but not race and ethnicity is likely associated with chronic GVHD outcomes after allogeneic HCT
      • Linkage across research databases may provide a more complete understanding of HCT patient outcomes
      • Race and ethnicity matching may not impact umbilical cord blood transplant patient outcomes
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  • Resources
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    • Umbilical Cord Blood Collection Training for Public Donation
  • Patient Resources
  • Financial Resources
  • Obstetrician Resources
  • Technique Videos
  • Umbilical Cord Blood Collection Training for Public Donation

Patient Resources


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  • Patient Resources
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Related Resources

  • Patient Education Materials
  • Financial Resources
  • HCT Patient Demographics

 

Patient Resources

  • BeTheMatch.org/Patient

Patient Resources and Support

We provide educational resources and support to all patients before, during and after transplant. We help patients considering autologous and allogeneic transplant and patients years after transplant, as well as their families and caregivers. 

Treatment Resources

Clinical Trials Search & Support

For many people with a blood cancer or blood disorder, treatment through a clinical trial provides hope and a potential cure. But it's not always easy to find one. Our clinical trials navigators can help you and your patients explore available clinical trials. All of our programs and resources are free.

For patients, we provide:

  • One-on-one search support- We can help patients learn about treatment options, search for trials they may qualify for, answer their questions and explain their rights when participating in a clinical trial.
  • A searchable clinical trial database - Our online search tool includes trials from clinicaltrials.gov that are re-written in patient-friendly language. Learn more about the search tool.
  • Educational resources about clinical trials and treatments that may be available through a clinical trial
  • A financial grant to help cover some costs of traveling to a clinical trial. 

For you and your colleagues, we can:

  • Help identify possible trials for your patients
  • Provide plain language resources to help you teach your patients about clinical trials and newer treatment options like gene and other targeted therapies

Contact us or share our information with your patients:

  • Web: CTSearchSupport.org
  • Phone: 1 (888) 814-8610
  • Email: Contact@CTSearchSupport.org

Educational Resources

At every stage of transplant, patients have a lot to learn. Our free patient education resources are available for you to use with your patients, caregivers, and families. Every tool we create-DVDs, booklets, webinars and more-is designed to meet the unique needs of your patients and is reviewed by medical experts for accuracy and accessibility to ensure all patients get reliable information.

Explore Free Patient Resources

  • View all patient education resources in the materials catalog
  • Stage-specific resources  address the unique educational needs of patients learning about, preparing for, or living after transplant
  • Age-specific resources  address the unique informational needs of children, teens/young adults and adults
  • Translated resources  meet the needs of non-English speaking patients

Your patients can also request these materials and access patient-friendly information by visiting BeTheMatch.org/patient .

New: BMT Journeys - Ordinary People with Exceptional Stories

This collection, curated by Be The Match's Patient Support Center, captures the depth of the BMT experience. Through 6 chapters and a foreword by Suleika Jaouad, stories of isolation, illness, healing, faith and resilience will offer your patients hope and comfort during their own transplant journeys. Request a copy from the materials catalog or view the book online.

 

New: Transplant Basics Series for Patients 

Transplant Basics Spotlight Screenshot

Our new Transplant Basics series of short videos, a booklet and fact sheets is designed to help your patients and caregivers understand what to expect before, during and after an allogeneic or autologous transplant. The multiple formats allow you to help your patients and caregivers to learn in the way that works best for them. The free resources can be used alone or in conjunction with one another.

  • Short, easy-to-understand videos use interviews with patients, caregivers and transplant clinicians to share their experiences, and animation to explain difficult concepts. Available soon in Spanish and on DVD. View the free videos
  • The Transplant Basics booklet helps patients understand what to expect throughout the transplant process, and questions to ask as they consider or prepare for transplant. Download or order the booklet
  • Our fact sheets offer brief overviews of the transplant process. They are ideal resources for patients who prefer to receive education in smaller pieces. Download the fact sheets

New: CAR T Cell Therapy Video for Patients

With two FDA-approved CAR T therapies and more in clinical trials, your patients may be looking for information on this new treatment option. Our CAR T Cell Therapy video provides patients and caregivers with easy-to-understand information on:

  • What CAR T cell therapy is and how it works
  • How CAR T therapies are made
  • Who it may help
  • What the treatment is like
  • Potential risks and benefits
  • Questions to ask their doctor
  • Cost
  • Centers that offer CAR T therapy

View the video by visiting the Jason Carter Clinical Trials Program website.

One-on-One Support

Be The Match offers personalized and confidential support to all your patients-both allogeneic and autologous. We have a team dedicated to helping patients, families, and caregivers navigate the transplant process before, during, and after transplant. It's customized for their needs, when they need it most.

  • Dedicated Patient Services Coordinators  are available to provide one-on-one professional guidance by answering questions, sharing information and resources, and offering support.
  • Peer Connect Program  helps patients and caregivers connect with another patient or caregiver who has already been through transplant.
  • Caregiver's Companion Program  combines coaching sessions with a helpful toolkit to help caregivers of adult transplant patients stay healthy while they care for their loved one. 
  • Non-English Support  is available to ensure all patients receive resources and information in the language they are most comfortable. Spanish-speaking patients can get the support they need from our trained bilingual patient services coordinator. For all other non-English-speaking patients we provide a free interpreting service in more than 100 languages. 

You can print or order our Patient Services brochure to provide to patients. Or you and your patients can contact us to learn more about our educational resources and patient support services. Call 1-888-999-6743 or email: patientinfo@nmdp.org .

 

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Slides may be downloaded and used without permission for one-time presentation or personal use.  For publication, use in print or web, or repeated presentations, please submit a Copyright Request Form.

Transplant Indications and Outcomes

  • HLA Today
  • Disease-Specific Indications and Outcomes
  • Additional Outcomes
  • Eligibility
  • Referral Timing Guidelines
  • Order Kits
  • HLA Typing for Family Members

Transplant Therapy and Donor Matching

  • Cell Sources
  • HLA Typing and Matching
  • Donor or Cord Blood Search Process
  • Jason Carter Clinical Trials Program

Resources

  • Patient Resources
  • Financial Resources
  • Obstetrician Resources
  • Technique Videos
  • Umbilical Cord Blood Collection Training for Public Donation

Contact Us

About Us

Our Websites

bethematch.org
BeTheMatch.org Information and support for patients, donors and supporters of our mission.
BeTheMatchBioTherapies.com
BeTheMatchBioTherapies.com Proven solutions for organizations developing and delivering new cellular therapies
CIBMTR.org
CIBMTR.org Transplant research, clinical studies, publications and outcomes data for researchers and clinicians.
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Entrusted and under contract to operate the C.W. Bill Young Cell Transplantation Program, including Be The Match Registry®.
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